OUR INCREDIBLE COMMUNity
We are amazed by your generosity and moved by your kindness.
Over 6000 people in 52 countries have stood up for Mila. You've rallied your families and friends to raise awareness and critical funds. You've offered services, meals and company to Mila to keep her strong. You've fought alongside our family. Because of YOU, Mila has been given an unprecedented second chance at life. And now, her story is giving hope to many more families fighting rare diseases worldwide. TOGETHER, we can SAVE LIVES.
We wish we could list every person who has helped us so far. Below are just some of Mila's Tribe.
World renowned Ad agency, Crispin Porter + Bogusky, together with good friends Dave and Jen, came into our house just weeks after Mila was diagnosed with a film crew and spent hundreds of hours editing our video - without this video the world wouldn't have been able to "know" Mila and be moved enough to help us.
Good friend Heather organized an online children's book sale connecting us with old and new friends, with all proceeds going to our fight.
Extraordinarily talented and vivacious pianist Sarah H read about Mila in our local paper and offered the beauty of the piano to engage Mila's senses.
Mila’s neighbors, Ellen and Nicole, decorated donation jars and joined efforts with their Montessori school to raise money and bring awareness to our cause.
Mantra rock band, Katie Wise & Bhakti Explosion, held a beautiful kirtan concert at Shine Gathering Place for us that moved the body and soul - with special guest Mila!
Led by friends Eliana and Linda, the Colorado Governor's wife and top chefs offered an elegant evening to benefit us.
Friends Zoey and Trent and their family restaurant dedicated the month of May to Mila with proceeds, posters and shout outs to help us spread the word!
Optoro founders, Mila's uncle Adam and friend Tobin, raced along side us to help us get traction by graciously sponsoring our DC gala and donating items to our numerous auctions.
Suzanne was instantly ready to help as soon as she attended one of our benefits, travelling and shooting footage for us for a future video.
Charity Miles founder, Gene, was so moved by Mila's story that he flew out to Boulder to record a podcast interview with Mila's mom Julia which he blasted out to his hundreds of thousands of members.
Old friends of Mila's mom from childhood offered a special promotion for our cause through their company Giant Microbes.
Mila's mom Julia hiked up Grays Peak to 14,278 ft together with other parents fighting for their kids with Batten Disease, including new friend and Batten pioneer Kristen.
Mila's mom Julia was invited to speak on a panel discussing the role of power, with promotion and proceeds going to our fight.
This British watch company heard about Mila and nicely promoted our story to their customers and offered us proceeds.
MECHA gym owners Kate and Josh stood up tall to fight along side us, sharing Mila's story with their members and friends.
1st grade Girl Scouts from Colorado Daisy Troop ran the bake sale at the Jeff & Paige Benefit Concert and raised $690 for us!
New friend Christina heard about Mila and ran the NYC Marathon on Nov. 5th raising thousands, in honor of Mila's 7th Birthday.
Collins Elementary, just outside Chicago, was so moved by Mila's story that they dedicated their Service Learning project to her!
Fifteen families and 2 bakeries, led by Mila's biggest supporter Dana, baked, packaged and delivered 800 boxes of holiday cookies in one weekend!
These amazing friends asked all of their guests to donate to our foundation in lieu of gifts. We are humbled by their generous and thoughtful gesture!
Thank you to local chef, Linda Hampsten of The Bindery, Room & Board Denver and The Family Jones Spirit House for hosting a rooftop Cookbook Release Party to help raise funds for MMF.
Professional photographer and friend Julie spent time with our family on many occasions to document the love and hope in our home since Mila's diagnosis.
The Italian community in Denver gathered around good food and wine for a benefit dinner at Parisi restaurant.
Old friend Clare teamed up with one of our favorite kids clothing companies, Tea Collection, to raise money and awareness.
NY friend Margaret teamed up with hip Brooklyn bar to gather Mila supporters around craft beers and share our cause.
One of Mila's dedicated friends, Chloe, inspired her school to learn about Batten Disease and join our fight. She often closes her eyes to feel what it's like to be Mila.
Bakery owners Kim & Jake who "met" Mila in birthing class before she was even born, have fought all year by our side - providing delicious gluten-free desserts at FIVE events and rallying restaurants, auction donors and friends and family.
Over 20 top DC chefs and mixologists stood up to fight Batten Disease at this happening gala that gathered hundreds.
Our amazing Boulder community showed up to support us over tastings from 25 top chefs at ad agency CP+B's headquarters.
Chef and cyclist, Fabio, donated private cooking classes to our auctions and included our foundation logo on his cycling tour jerseys.
Love, Faith, Believe - perfectly appropriate mantras on necklaces from nikscandi, with all proceeds given to our foundation.
Local Sweet Cow ice cream chain blasted Mila's story out to their followers and gave proceeds from tables at a popular festival.
Renowned Iyengar yoga teacher, Laura, met Mila and has since created a deep connection with her through a unique restorative approach to neurological disease in children.
BFF Julie and her amazing Atlanta CycleBar community rode hard and fought hard for Mila and her treatment.
Kind friend Jenna organized a surprise visit of Mila's favorite Frozen characters, Elsa and Kristoff - a highlight of Mila's year!
Mila’s cousin Mary utilized her travels around the US by spreading Mila's story to strangers on video one hug at a time.
Corporate jet company, Flexjet, heard Mila's story and kindly offered to transport our entire family to Boston's hospital.
4th grade Girl Scouts from Colorado's Bear Creek Troop 73017 held a bake sale for our cause and earned their service badges!
Sunflower Farm, where Mila spent much of her childhood, graciously offered a Family Harvest Festival around the campfire, together with holiday photo sessions by new friend and photographer Natasha.
Keri, who has known Mila since birth, organizes regular Yin Yoga sessions at her home with much love in support of Mila.
New friends Clara and Letti hand-made Christmas ornaments, selling them to friends and family, which raised us money and awareness!
We're so proud of Mila's friend Dana Perella for receiving the Global Genes 2019 Rising Star Award because of her unwavering dedication to fighting for Mila, raising over $100K for Batten, PANS and SMA through her own foundation, Cookies4Cures.
Local Fior Gelateria owners, Giulia + Bryce, dedicated their grand opening to us, with creamy gelato for Mila and friends, and all sales funding our trials.
Front Range Hippotherapy heard of Mila's fight and offered weekly riding sessions to keep her strong and stimulate her senses.
Numerous friends from around the country - Meredith, Margaret, Kandy, Katherine, Imani, Christina, Kristen - pitched our story to the media to get the word out.
Colorado's Broomfield High School dedicated their school-wide Wish-Week to Mila, including a teacher basketball game that gathered thousands and local media.
Chef and Bindery owner, Linda, heard about Mila as soon as she was diagnosed and provided incredible meals and great staff at our Denver and Boulder benefits.
Mila's aunt Sophie and her fashion company dedicated proceeds and a social media campaign to Mila and our cause!
James Beard Award-winning Chef and old friend of Mila's mom, Gerard, flew to DC to rally the city's best chefs and cook up tasty dishes together for our Stop Batten benefit.
Over twenty Mila's Miracle teams stood out at one of the world's largest races, with 50K people, to help us raise money and awareness for Batten Disease.
Good friend Giulia brought together local families at Mod Market for an evening of friends and food to benefit our foundation.
LA sisters and old friends Mary and Lucy dedicated perfume sales and healing mantras from their appropriately named company, Wild Precious Life.
Old friends, Penny and Tilda, hand-made fresh lemonade and cookies and invited everyone they knew for their friend Mila!
New friend Jenna and her family have rallied all year by our side - this time offering lemonade and treats to help us!
Mila's old friend from stuttering therapy, Dana & her brother Carson, baked cookies every week and dragged their wagon door-to-door for months. They turned their first $1K into a GoFundMe campaign for Mila which raised over $50K in just one month!
Since launching our campaign, the GoFundMe headquarters have stepped up to help get our story out to the masses.
As birthing coach and doula, Katie welcomed Mila into the world - now she fights for her life through music, and dedicated her album to Mila's benefit concert.
Local celebrity musicians Jeff & Paige have fought hard for Mila by sharing her story at events and online to fans, and hosting a large family concert benefiting us!
Dream Makers preschool has welcomed Mila and Azlan with open arms, always conscious of making Mila feel normal and loved, and supporting our fundraising in every way that they can.
Dedicated friends Kate and Josh, together with the Laudisio family and Mateo restaurant, hosted an evening of fine food and wine for Mila's cause.
Local photographer and mom Natasha set up family photo sessions at numerous events and put all proceeds toward our trial.
Minnesota's Torch sauce founder Jesse stumbled upon Mila's story and immediately rallied his customers to help us!
Local law firm owners John and Peter kindly offered us proceeds and invited other local firms to join their efforts.
My dream of gathering our family and friends around Mila and singing her favorite songs outdoors came true. This first annual gathering beautifully combined Mila's love of people, nature and music.
Good friends Giulia and Bryce of Gelato Boy launched “Gelato for Good” with Mila in mind. Using Mila’s artwork & inspired by her favorite mango flavor, Mila’s Miracle Mango Lassi is being delivered around the country!
OUR PARTNERs
We are so grateful to each of our partners for donating the fundamental services that got us to where we are now.
We are always eager to hear your ideas on how you can help us! Email Julia at julia@stopbatten.org.
WE NEED YOUR HELP NOW
Mila was given an unprecedented second chance at life through the first-ever truly personal medicine, Milasen. Now we need your help to pave this path for many more children like Mila across hundreds of rare diseases.
Mila's Miracle Foundation, Inc. is a 501(c)(3) nonprofit organization. All donations are tax-deductible.