mILASEN - hOW IT WORKS
being the first
Mila is the first person in the world to receive a drug customized for just one person. It was named Milasen. Although Mila had lost a lot before she began treatment, she was given an unprecedented second shot at life. Mila’s fight was not in time for her, but her story is giving enormous hope to many more across all rare diseases that otherwise would have no chance.
mila’s gift to the world
Milasen gave Mila hope that we never thought was possible. But there are still millions of children around the world dying from genetic diseases like Batten.
We are on a mission to turn Mila’s incredible story into an entirely new treatment path of individualized medicines. We believe that by making this platform approach accessible across all rare diseases, we can help solve the drastic problem of rare disease in children. Our hope is that our work will give children like Mila a second chance at life.
a new path of truly personal medicines
the path to a brighter future for many
WE NEED YOUR HELP NOW
Mila was given an unprecedented second chance at life through the first-ever truly personal medicine, Milasen. Now we need your help to pave this path for many more children like Mila across hundreds of rare diseases.
Mila's Miracle Foundation, Inc. is a 501(c)(3) nonprofit organization. All donations are tax-deductible.